Boy Is Slowly Turning Into STONE, Thanks To Earthâ€™s Scariest Disease.
Jaiden Rogers has not had an easy life and he is only 12 years old. He was adopted by Natalie and Tim Rogers when he was two years old in 2007. When the couple picked up their son from Georgia to take him to live with them in Colorado, they found the toddler was malnourished. He had been born with fetal alcohol syndrome.
The boy had been neglected so much in his first two years of life that his new family found him eating off the dog dish once. In the first year, Jaiden would walk into his parents room in the middle of the night to touch their faces and make sure they wouldnâ€™t abandon him. With a lot of time, love, and patience, Jaiden came to trust that his family was real.
Four years ago, Tim noticed his son had a lumps on his arm.
â€œItâ€™s almost like if you took your finger and tapped on his arm, itâ€™s almost like tapping on a counter top, on a hard surface. Thatâ€™s what it feels like,â€ Tim explains.
The spots began to spread to the boyâ€™s back, legs, and hips.
One day, Jaiden informed his parents that his legs didnâ€™t work anymore and he needed a wheelchair.
After many appointments, doctors concluded Jaiden had stiff skin syndrome.
Stiff skin syndrome is a rare, genetic condition where the skin thickens and hardens. This causes the joints to be in a bent position.
â€œHe is only able to inform us when heâ€™s hungry or wants to use the toilet. He used to sit and cry but we didnâ€™t know what was hurting him or how to help him.
â€œAny young child would see him and run away crying. It was hard for him and us to watch.â€
His mum Nar isnâ€™t able to work as she spends all day caring for him and said he is only able to communicate when he wants the toilet or needs feeding.
Nanda told Mail Online : â€œHis skin started peeling off 15 days after he was born and then new skin began to grow very thick.
â€œIt hardened and turned black, we had no idea what to do about it. No one helped us.
Ichthyosis is a long-term condition that results in hard â€˜fish scalesâ€™ forming on the skin and is caused by a faulty gene passed down from parents.
There is no cure for the disease but it can be managed by daily skincare and other medications.
Rameshâ€™s family were unable to afford medical care on Nandaâ€™s 7,000 rupees (Â£44) a month salary.
But he has found fresh hope thanks to help from Brit singer Joss Stone, who has raised much-needed funds for his medical treatment.
Joss was due to perform a gig in Nepal and was in touch with native singer Sanjay Shrestha who told her about the little boy.
She saw a video of Ramesh struggling to walk and wanted to help with a concert in the capital Kathmandu.
The gig raised Â£1,375 for his treatment and Joss spent the day with him, showering him with gifts and chocolates.
Dr Sabina Bhattrai, assistant dermatology professor, told the Mail: â€œHe was in a really bad state when he was admitted. We had to remove the scales from his body and it was painful.
â€œOver a period of two weeks we gave him antibiotics to avoid infections and applied drugs and moisturizer on his body to remove the dead skin.â€